I am 71 years old and our grandson was born with a rare genetic defect called Creatine Transporter Deficiency (CTD). His body creates creatine but is missing the transporter necessary to get it to the brain cells and muscles for development due to a mutation.
I decided to ride across the state in June 2018 to raise awareness and funds for the Association for Cerebral Creatine Deficiency Syndromes.
I rode my 1988 Cannondale from Cincinnati to Cleveland for 6 days, stayed at B&B’s or Inns along the way and met many amazing people who were interested in hearing my story and gave emotional as well as financial support.
I rode 60 to 70 mile days between Westerville and Cleveland on the highest temperature and humidity days of the year. Sometimes I didn’t see another person for hours and thought I was suffering until I thought of the children and families dealing with CCDS and my ride was put back into perspective for me. I raised a total of $5500 for the foundation.
OTET salutes you, Chuck!
